Researchers at the University of Wisconsin – Madison are conducting a study about caregiver
and family quality of life for caregivers of children with Autism Spectrum Disorder (ASD). The
study will look at caregiver roles and how they impact caregiver relationship satisfaction and
caregiver mastery. We want to understand how these factors impact the quality of life for the
caregiver and how the caregiver perceives they impact their family’s quality of life.
WHO: You are eligible to participate if you are a caregiver of a child with ASD. Child has been
defined as a dependent who is younger than the age of 18. Caregivers will be viewed more
widely, as we know that not all caregivers are the biological parents of a child, therefore
individuals (e.g. stepparents, foster parents, guardians) who identify as a primary caregiver of a
child with ASD qualify.
WHAT: Participant will complete 1 online survey. The survey consists of one demographics
questionnaire and seven additional scales that will look more closely at the caregiver role impact,
caregiver relationship satisfaction, caregiver mastery, caregiver quality of life, and family quality
HOW: Please go to the following website to participate:
COMPENSATION: There will be no compensation for your participation in this study.
However, your participation allows for the field to better understand the lives of caregivers with
children with ASD.
QUESTIONS: If you have any difficulty with the link or if you would like additional
information, please contact Kerry Thompson, Ed.S., M.S., NCC, by email at
[email protected], and she will be happy to assist you.
Thank you in advance for your participation in this important study!